Resources

Also below is a comprehensive list of resources compiled by one of our colleagues, Randy Most.
The 36-Hour Day, 4th edition: The 36-Hour Day: A Family Guide to Caring for People with Alzheimer Disease, Other Dementias, and Memory Loss in Later Life, 4th Edition [Paperback] (A Johns Hopkins Press Health Book)
Gruetzner, H. (1992) Alzheimer's: A Caregivers Guide and Resource Book
McCurry, S. M. (2006). When a family member has dementia: Steps to becoming a resilient caregiver. Connecticut: Praeger.
My mother, your mother: Embracing "Slow Medicine," a compassionate guide to caring for your elderly loved ones, by Dartmouth physician Dr. Dennis McCullough.
Coach Broyles Playbook for Alzheimer's Caregivers is available free at: http://www.alzheimersplaybook.com/

Dementia Resources For Caregivers
BOOKS
Â· Caregiver Guides and Intervention Strategies
A Caregiverâ•˙s Guide to Alzheimerâ•˙s Disease â•„ 300 Tips for Making Life Easier by Callone, P. et al, Demos medical Publishing: 2005
Alzheimerâ•˙s Disease: Activity Focused Care 2nd Edition by Hellen, C., Butterworth Heineman: 1998
The Complete Guide to Alzheimer Proofing Your Home by Warner, M. L., Purdue University Press: 2000
Elder Rage or Take My Fatherâ•œPlease! by Marcell, J., Impressive Press: 2002
Caring for a Person With Memory Loss and Confusion. Helping You Help Others: An Easy Guide for Caregivers. Journeyworks Publishing, 1995-2010
Bathing Without a Battle: Personal Care of Individuals with Dementia by Barrick, A. L., et al, New York: Springer Publishing Company:2002
The Boomer's Guide to Aging Parents, Vol: 6: How to Handle Money for Aging Loved Ones by Rosenblatt, C. L. (2009)
The 36-Hour Day: A Family Guide to Caring for Persons With Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life by Mace, N. L., and Rabins, P. V.,Warner Books: 2006
Talking to Alzheimerâ•˙s by Strauss, C., New Harbinger: 2001
Coping With Caring: Daily Reflections for Alzheimerâ•˙s Caregivers by Roche, L., Elder Books: 1996
Moving a Relative with Memory Loss: A Family Caregiverâ•˙s Guide by White, L. and Spencer, B., Whisp Publications: 2002
When a Family Member Has Dementia: Steps to Becoming a Resilient Caregiverâ•¨McCurry, Susan M., Praeger Publishers: 2006
The Dysphagia Cookbook: Great Tasting and Nutritious Recipes for People with Swallowing Difficulties by Achilles, Elayne. Cumberland House Publishing: 2004
Thereâ•˙s Still a Person in There by Michael Castleman, Perigree Trade: 2000
When Your Loved One has Dementia: A Simple Guide for Caregivers, by Joy Glenner et al, Johns Hopkins University Press: 2005
The Insiderâ•˙s Guide to Dementia Care: What You Should Know About Assisted Living by Katherine Goethe et al, WingSpan Press: 2009
Alzheimer's Activities That Stimulate the Mind by Bazan-Salazar, E., McGraw-Hill: 2005
When Words Have Lost Their Meaning: Alzheimer's Patients Communicate through Art by Abraham, R., Praeger:2004
Aerobics for the Mind by Engleman, M., Attainment Company: 2005

Dr. Barry Jacobs -- The Emotional Survival Guide for Caregivers: Looking After Yourself and Your Family While Helping an Aging Parent.

Â· Personal Stories and Caregiver Support
A Cup of Comfort for Families Touched by Alzheimerâ•˙s: Inspirational Stories of Unconditional Love and Support by Sell, C., Adams media: 2008
Alzheimerâ•˙s, A Love Story: One Year in My Husbandâ•˙s Journey by Davidson, A., New York: Birch Lane Press Book: 1997
Living in the Labyrinths: A Personal Journey Through the Maze of Alzheimerâ•˙s by Diana Friel McGowin, Delta: 1994
The Forgetting: Alzheimerâ•˙s: Portrait of an Epidemic by David Shenk, Anchor: 2003
Through the Wilderness of Alzheimerâ•˙s by Robert and Anne Simpson, Augsburg Fortress Publishers: 1999
Painted Diaries by Kim Howes Zabbia, Fairview Press: 1996
Losing My Mind: An Intimate Look at Life With Alzheimerâ•˙s by Thomas Debaggio, Free Press: 2003
Finding the Joy in Alzheimerâ•˙s: Caregivers Share the Joyful Times by Brenda Avadian, North Star Books: 2003
Waiting for the Morning: A Mother and Daughterâ•˙s Journey Through Alzheimerâ•˙s Disease by Brenda Parris Sibley, Writers Club Press: 2001
Ten Thousand Joys & Ten Thousand Sorrows: A Couple's Journey Through Alzheimer's by Hoblitzelle, O., Tarcher: 2010
Speaking Out Minds: Personal Reflections From Individuals With Alzheimerâ•˙s by Synder, L, New York: With. H. Freeman and Company: 1999

Â· General Information
Alzheimerâ•˙s Early Stages: First Steps for Family, Friend, and Caregivers by Kuhn, D., Hunter House Publishers, Inc: 2003
The Alzheimer's Action Plan: What You Need to Know--and What You Can Do--about Memory Problems, from Prevention to Early Intervention and Care by Doraiswamy M.P., Lisa P. Gwyther M.S.W. and Adler T., St. Martins Griffin: 2009
The Alzheimer's Answer Book: Professional Answers to More Than 250 Questions about Alzheimer's and Dementia by Atkins, C., Sourcebooks Inc.: 2008

Â· Frontotemporal Dementia
What If Itâ•˙s Not Alzheimerâ•˙s Disease?: A Caregiverâ•˙s Guide to Dementia by Lisa and Gary Radin, Prometheus Books: 2003
The Banana lady and Other Stories of Curious Behavior and Speech by Andrew Dertesz, Trafford Publishing: 2006
Losing Lou-Ann by Clinton Erb, Holistic Education press: 1996
An Evolution of Love: Life and Love with Frontotemporal Dementia by Marie Sykes and Michelle Stafford, Georgetown Publishing: 2007

WEBSITES
Â·      Support and Resources
Family Caregiver Alliance    www.caregiver.org
Alzheimerâ•˙s Association   www.alz.org
Alzheimerâ•˙s Caregiver Support Online   www.alzonline.net
Children of Aging Parents   www.caps4caregivers.org
Elder Care Online www.ec-online.net
Family Caregivers Online   www.familycaregiversonline.net
Finding The Humanity and Love in Alzheimerâ•˙s Care   www.bigtreemurphy.com
Well Spouse Association www.wellspouse.org
Area Agency on Aging www.eldercare.gov
Palliative Dementia Care Resources www.pdcronline.org
Caring Road Support Network www.caringroad.org
APA Caregiver Briefcase www.apa.org/pi/about/publications/caregivers/index.aspx

Â· Products and Services
Weill Cornell Medical College www.thiscaringhome.org
Ageless Design www.agelessdesign.com
Aging Parents www.agingparents.com
The Attainment Company www.attainmentcompany.com
Ableware Tools for Independent Living www.services.maddak.com
National Association of Professional Geriatric Care Managers www.caremanager.org
The National Academy of ElderLaw Attorneys www.naela.org
Interactive Therapeutics www.interactivetherapy.com
The Alzheimerâ•˙s Store www.alzstore.com

Â·      Frontotemporal Dementia and Related Disorders
Association for Frontotemporal Dementias    www.theaftd.org
Frontotemporal Dementia Caregiver Support Centre    www.ftdsupport.com
Pickâ•˙s Disease Support Group Online    www.pdsg.org.uk
Pickâ•˙s International Support Group for Teens http://health.groups.yahoo.com/group/pickssupport
Primary Progressive Aphasia Listserve http://groups.yahoo.com/group/PPA-support
Northwestern Univ- PPA and Frontal Dementia www.brain.northwestern.edu/ppa/handbook.html

Â· Lewy Body Dementia
Lewy Body Dementia Association www.lewybodydementia.org
Help Guide LBD http://www.helpguide.org/elder/lewy_body_disease.htm
Living With Lewy Body http://livingwithlewybody.blogspot.com/
Mayo LBD Coping and Support: http://www.mayoclinic.com/health/lewy-body-dementia/DS00795/DSECTION=cop...

Â· General Information
Administration on Aging www.aoa.gov
NIA Alzheimerâ•˙s Disease Education and Referral www.nia.nih.gov/alzheimers
Dementia and Driving www.thehartford.com/alzheimers
Power of Attorney Documents www.caringinfo.org
AMA Older Driver Safety www.ama-assn.org/ama/pub/physician-resources/public-health/promoting-hea...?
HBO The Alzheimerâ•˙s Project: 4 part documentary series www.hbo.com/alzheimers

Disclaimer Notice: These references are provided for informational purposes only and are not product endorsements.